Longwood Foundation Funds $100,000 Multi-Year Breast Cancer Quality of Life Study
Beth Krallis, Communications Director
Delaware Breast Cancer Coalition, Inc.
302-778-1102 ext. 1014
WILMINGTON, DE (January 10, 2017) – The Delaware Breast Cancer Coalition is pleased to announce the receipt of a $100,000 capacity building grant from the Longwood Foundation to pursue a multi-year Quality of Life study, expansion of a database, and a pilot project for a future study related to programing to underserved populations. The study will investigate the relationship between social support, education programs and other findings in enhancing adaptation to cancer, specifically in reducing cancer related worry and will be the agency’s first scientific study in the field of research.
The purpose of the Quality of Life Study is to learn how and to what extent the range of programming and activities offered by DBCC is having an impact on women and men who have been diagnosed with breast cancer. The study utilizes a valid, reliable, widely used measure called “FACIT” which was adopted in 1997. The FACT-B (breast cancer) tool is a 37-item “compilation of general questions divided into four primary QOL domains: Physical well-being, social/family well-being, emotional well-being, and functional well-being.” DBCC has been granted a license by FACIT to use the tool in both English and Spanish, and as a hard copy and online survey. The study has been approved by HumRRO Institutional Review Board (IRB), based in Virginia.
The questionnaire and data will be administered and evaluated by Barbara Goldberg & Associates, LLC (BGA) over a three year time period. Barbara Goldberg & Associates, LLC (BGA) is a 35-year-old, Delaware based consulting firm specializing in research and evaluation. The findings of this study will position the Coalition to further its research on breast cancer programing in underserved populations. Additionally, research findings will be disseminated to larger audiences including conferences, op ed pieces and publications.
The Delaware Breast Cancer Coalition is a 501(c)(3) organization offering statewide programs and services of education, outreach, and early detection and treatment of breast cancer. Its mission is to create a community where every person diagnosed with breast cancer is a survivor, and fear and doubt are replaced with knowledge and hope.
Headquartered in Wilmington with offices in Sussex and Kent Counties, DBCC’s programs reach diverse communities to deliver messages that address their unique concerns about breast cancer and early detection. Recognizing the barriers of language, culture, and economics, DBCC trains community advocates to educate and encourage women to take responsibility for breast health. DBCC helps women with low incomes or those with little or no insurance to receive free or reduced-cost care.
DBCC also supports the National Breast Cancer Coalition’s advocacy efforts to end breast cancer. All funds raised for DBCC support programs in Delaware and the neighboring areas in Pennsylvania, Maryland, and New Jersey.
For more information about the Delaware Breast Cancer Coalition, call 866-312-DBCC (3222) or visit the website at http://www.debreastcancer.org.