Quality of Life Study
The Delaware Breast Cancer Coalition is in the second phase of a Quality of Life study funded through a grant from the Longwood Foundation. It is DBCC’s first scientific study in the field of research.
The purpose of the Quality of Life Study is to learn how and to what extent the range of programming and activities offered by DBCC is having an impact on women and men who have been diagnosed with breast cancer. The study utilizes a valid, reliable, widely used measure called “FACIT.”
The FACT-B (breast cancer) tool is a 37-item “compilation of general questions divided into four primary areas that reflect quality of life: physical well-being, social/family well-being, emotional well-being, and functional well-being.
The questionnaire and data will be administered and evaluated by Barbara Goldberg & Associates, LLC over three years. BGA is a consulting firm specializing in research and evaluation.
In order to make the study accessible and inclusive, DBCC will use the tool in both English and Spanish, online and in written form.
The Quality of Life Study is a pilot project for a future study related to programming for breast cancer patients in underserved populations. The subsequent study will explore how social support, education programs and other factors help people to adapt to cancer, specifically in helping to reduce the stress and worry that often accompany illness.
The findings of this study will position the coalition to further its research on breast cancer programming in underserved populations in Delaware.
Results will impact people with breast cancer far beyond the First State. Research findings will be disseminated to larger audiences through health and social conferences, opinion-editorial pieces in the media and various publications.