Resources and Links
Where to Start:
- If you are:
- • A Kent County, DE resident
• In active treatment for breast cancer
• Experiencing extreme financial hardship
(Made possible through a grant from the Potter Trust of the CenDel Foundation)
- The National Breast Cancer Coalition Fund (NBCCF) Guide to Quality Breast Cancer Care. We get questions every day from breast cancer patients about their care. Everyone has the same basic question. What can I do to get quality care? This guide is our answer to that question. It is for everyone facing breast cancer and everyone who wants to help them.
- The National Breast Cancer Coalition:
- We are dedicated to ending breast cancer through the power of grassroots action and advocacy. NBCC’s mission is to eradicate breast cancer, the most common form of cancer among women in the United States, by focusing the administration, U.S. Congress, research institutions and consumer advocates on breast cancer. NBCC encourages all those concerned about this disease to become advocates for action and change. The Coalition informs, trains and directs patients and others in effective advocacy efforts. Nationwide, women and men are increasing the awareness of breast cancer public policy by participating in legislative, scientific and regulatory decisions, promoting positive media coverage and actively working to raise public awareness.
- An advocate driven site that reviews the current news, research and controversies in breast cancer. “We hear a lot of messages about prevention, screening, and treatment of breast cancer. But how do we know what is true? Here at KnowBreastCancer.org we give you the facts and evidence behind the major issues in breast cancer so you can decide for yourself. Read what women and men who have had breast cancer have to say. Then become an advocate for yourself and others. Be empowered by becoming informed. Join in the work of the National Breast Cancer Coalition to eradicate breast cancer.”
- Beyond The Shock is a global online educational resource that includes easy-to-understand informational videos, stories from breast cancer survivors, and a community Q&A. Produced by the National Breast Cancer Foundation.
A non-profit organization dedicated to providing the most reliable, complete, and
up-to-date information about breast cancer with the mission of helping
women and their loved ones make sense of the complex medical and
personal information about breast cancer in order to make the best
decisions for their lives.
- Living Beyond Breast Cancer (LBBC):
A non-profit educational organization committed to empowering all women affected by breast cancer
to live as long as possible with the best quality of life.
- National Breast Cancer Foundation:
The National Breast Cancer Foundation’s mission is to save lives by increasing awareness of breast
cancer through education and by providing mammograms for those in need.
Has excellent videos and interactive presentations about breast cancer.
- National Cancer Institute (NCI):
Coordinates the National Cancer Program, which conducts and supports
research, training, health information dissemination, and other programs
with respect to the cause, diagnosis, prevention, and treatment of
cancer, rehabilitation from cancer, and the continuing care of cancer
patients and the families of cancer patients.
- Cancer Support Community - Delaware (formerly The Wellness Community - Delaware):
Dedicated to helping people with cancer and their loved ones by
providing professionally led programs of emotional support, education
and hope as an integral part of conventional medical treatment.
- Komen for the Cure is the world’s largest grassroots network of breast cancer survivors and activists fighting to save lives, empower people, ensure quality care for all and energize science to find the cures. Thanks to events like the Komen Race for the Cure, we have invested more than $1.2 billion to fulfill our promise, becoming the largest source of nonprofit funds dedicated to the fight against breast cancer in the world.
More Online Resources:
- Abramson Cancer Center at the University of Pennsylvania
- The latest news on cancer treatment, cancer research, oncology advances, and cancer clinical trials.
- Metastatic breast cancer information and support for patients, family members and friends. AdvancedBC.org is dedicated solely to the needs of people living with metastatic breast cancer. Here you will find links to online resources, information about research and treatments, and the perspectives of Musa Mayer, long-time advocate and author.
- American Cancer Society:
- Nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
- Asbestos and Breast Cancer:
- Asbestos.com is a website and advocacy group that helps the victims of asbestos exposure and their loved ones. Asbestos is a carcinogen that has been linked conclusively to other health conditions like mesothelioma cancer, but its exact correlation to breast cancer is uncertain.
- American Society of Clinical Oncology
- Oncologist-approved cancer information from the American Society of Clinical Onlcology.
- Angel Flight East
- The mission of Angel Flight East is to provide free air transportation to qualified patients and their families by arranging flights to distant medical facilities, delivering supplies to disaster areas, and reuniting families during desperate times.
- Army of Women
- The Love/Avon Army of Women, an initiative of the Dr. Susan Love Research Foundation, thanks to a generous grant from the Avon Foundation for Women offers a revolutionary new opportunity for YOU to partner with research scientists to move breast cancer beyond a cure.
- Association of Cancer Online Resources
- ACOR offers access to 159 mailing lists that provide support, information, and community to everyone affected by cancer and related disorders.
- Avon Breast Cancer Crusade
- The Avon Foundation Breast Cancer Crusade has for more than a decade raised funds and awareness for advancing access to care and finding a cure for breast cancer.
- Bayhealth Oncology Services
- Bayhealth’s Oncology Services is a team of medical professionals - including medical and radiation oncologists, nurses, therapists, social workers and others - who provide the most comprehensive cancer services using the most advanced medical technologies and state-of-the-art equipment. Sophisticated technologies are combined with a personal touch and coordinated care to assure the best outcomes possible.
- Y-ME National Breast Cancer Organization:
- Y-ME has been a trusted resource for 30 years and has helped thousands find the information they need to make educated decisions. From articles on our Web site to the knowledge of our YourShoes peer counselors on the 24/7 Hotline, Y-ME keeps you informed. While we don’t give medical advice, we do explain in plain language the information you’re likely to encounter. No matter what the breast cancer topic is, Y-ME provides information you can trust with a survivor’s touch.
- CancerCare is a national non-profit organization that provides free professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs—including counseling, education, financial assistance and practical help—are provided by trained oncology social workers and are completely free of charge.
- Cancer Care Connection:
- A free public service to help you find local resources. mission is to coach people affected by cancer to obtain and use information and referrals to make informed decisions and to take action on their own behalf.
- Choose Health Delaware
- Visit Choose Health Delaware’s website to learn about Delaware’s health insurance reform and insurance marketplace. The marketplace offers health insurance for all. Locally trained and certified guides are also available to walk you through the enrollment process.
- Delaware Cancer Consortium
- The Delaware Cancer Consortium was originally formed as the Delaware Advisory Council on Cancer Incidence and Mortality in March 2001 to advise the governor and legislature on the causes of cancer incidence and mortality and potential methods for reducing both. Visit the Delaware Cancer Consortium’s website to connect with committee members, reports and find the latest cancer information affecting Delaware.
- FORCE: Facing Our Risk of Cancer Empowered:
- To improve the lives of individuals and families affected by hereditary breast and ovarian cancer.
- Fox Chase Cancer Center:
- Independent, nonprofit institution devoted to improving cancer treatment and prevention.
- Helen F. Graham Cancer Center:
- Christiana Care’s Helen F. Graham Cancer Center centralizes a vast array of outpatient services under one roof, making care more convenient, efficient, and effective. The Center features unique multidisciplinary medical services that include teams of specialists that patients can see all in one visit.
- Inflammatory Breast Cancer Research Foundation:
- Dedicated to the advancement of research of inflammatory breast cancer, leading to finding its causes and increasing the effectiveness of its treatment.
- Johns Hopkins University Breast Center:
- Comprehensive, multidisciplinary breast care program, offering a full spectrum of clinical and support services, from screening and diagnosis to treatment and counseling.
- For the Know Breast Cancer Web site, we work with our scientific colleagues to better understand what the research means. We then analyze the information from a patient’s perspective, and then tell you what we learned. We hope this information helps you make informed decisions about breast cancer.
- Lance Armstrong Foundation:
- The Lance Armstrong Foundation (LAF) is dedicated to enhancing the quality of life for those living with, through and beyond cancer. LAF focuses its activities on survivorship education and resources, community programs, national advocacy initiatives and research.
- Life After Early Breast Cancer (LifeABC):
- Life ABC is designed to raise awareness of the risk of recurrence for women with early breast cancer and encourage an ongoing dialog between these women and their health care professionals about the risk of recurrence.
- The Mautner Project: The National Lesbian Health Organization:
- Mautner Project, The National Lesbian Health Organization, improves the health of lesbians, bisexual and transgender women who partner with women (WPW) and their families. Provides direct services, offering support to lesbians, bisexual and transgender individuals with cancer and other life-threatening illnesses.
- The Mesothelioma Cancer Alliance Scholarship
- The Mesothelioma Cancer Alliance is now offering a scholarship of $4,000 to one student per semester who has been affected by any type of cancer.
- National Breast Cancer Coalition (NBCC):
- The nation’s largest breast cancer advocacy group, committed to ending breast cancer. NBCC and its sister organization, the National Breast Cancer Coalition Fund, work to educate and train individuals to be effective activists and to influence the public policies that affect breast cancer research and treatment.
- National LGBT Cancer Network:
- The National LGBT Cancer Network works to improve the lives of LGBT cancer survivors and those at risk by: educating the LGBT community about our increased cancer risks and the importance of screening and early detection; training health care providers to offer more culturally-competent, safe and welcoming care; and advocating for LGBT survivors in mainstream cancer organizations, the media and research.
- National Coalition for Cancer Survivorship:
- The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors.
- Screening for Life
- Screening for Life provides payment for cancer screening tests to qualified Delaware adults. The program is a cooperative effort of the Delaware Division of Public Health and the U.S. Centers for Disease Control and Prevention (CDC).
- Sisters on a Mission:
- Sisters on a Mission, Inc. is a 501©3, African-American Breast Cancer Support Group in Wilmington, DE. It is our desire to increase education and awareness about breast cancer and other cancers, which increases the chance of survival as individuals become proactive in their approach to health issues that affect their lives and communities.
- Susan Love, MD:
- The Mission of the Dr. Susan Love Research Foundation is to eradicate breast cancer and improve the quality of women’s health through innovative research, education and advocacy.
- Things you need to know before mastectomy surgery: by Jan Jessup
- Delaware breast cancer survivor Jan Jessup offers her expertise on “Things You Need to Know Before Mastectomy Surgery” after going through breast cancer herself in 2014. This was a project launched during her recovery period. This document is only four pages long and it lists things her doctors didn’t tell her before surgery that she wished she had known—such as what to take (and what not to take) to the hospital. It also suggests some helpful books, has notes on managing drains, activity during recovery, physical therapy—and even nipple tattooing!
- Young Survival Coalition:
- The Young Survival Coalition is the only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues unique to young women with breast cancer.